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In My Hands: A Story of Marfan Syndrome



 

World Cinema

2009 | 56 min | Feature Documentary

Directed by: Brenda Siemer Scheider

World Premiere

Cast & Credits

Producers: Ann Reinking, Brenda Siemer Scheider, Emma Morris
Editor: Syndi Pilar
Cinematographer: Alex Rappoport
Music: John Kander, Erik Satie, Jeffrey Saver

Program Notes

It is estimated that 1 in 5000 people in the United States have Marfan Syndrome, a genetic disorder of the body's connective tissue which causes overgrowth of bones and the risk of severe heart problems, among other effects. Those with Marfan also have to deal with its profound effect on their physical appearance. IN MY HANDS follows the inspirational stories of a group of children and adults living with Marfan, including the efforts of choreographer Ann Reinking (whose son, Chris, has the disorder) to shape a group of kids with Marfan into a graceful dance troupe.

Expected to be in attendance:  Director Brenda Siemer Scheider

About the Director

Brenda Siemer Scheider produced I KNOW A SONG, about her mother’s Alzheimer's disease. It was a finalist at the American Film Festival. Emma Morris is an Emmy® Award-winning producer/director/editor whose work includes the feature documentary SOMETHING WITHIN ME.



Thu, Oct 08, 12:00PM
UA East Hampton Theater 4
Mon, Oct 12, 8:00PM
UA East Hampton Theater 6