In My Hands: A Story of Marfan Syndrome

Cast & Credits
Editor: Syndi Pilar
Cinematographer: Alex Rappoport
Music: John Kander, Erik Satie, Jeffrey Saver
Program Notes
It is estimated that 1 in 5000 people in the United States have Marfan Syndrome, a genetic disorder of the body's connective tissue which causes overgrowth of bones and the risk of severe heart problems, among other effects. Those with Marfan also have to deal with its profound effect on their physical appearance. IN MY HANDS follows the inspirational stories of a group of children and adults living with Marfan, including the efforts of choreographer Ann Reinking (whose son, Chris, has the disorder) to shape a group of kids with Marfan into a graceful dance troupe.
Expected to be in attendance: Director Brenda Siemer Scheider
About the Director
Brenda Siemer Scheider produced I KNOW A SONG, about her mother’s Alzheimer's disease. It was a finalist at the American Film Festival. Emma Morris is an Emmy® Award-winning producer/director/editor whose work includes the feature documentary SOMETHING WITHIN ME.
Thu, Oct 08, 12:00PM
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UA East Hampton Theater 4
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Mon, Oct 12, 8:00PM
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UA East Hampton Theater 6
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